Viviendo con Cornelia de Lange

Este pequeño libro está dedicado a tantos padres que me han pedido ayuda en el Children's Health Pediatric Group en Texas. Me han pedido conferencias, información y seguimiento sobre esta condición. Por falta de tiempo no lo había podido publicar, pero esto es para ustedes, padres: "Viviendo en familia con Cornelia de Lange"

This little book is dedicated to so many parents who have asked me for help at Children's Health Pediatric Group in Texas. They have asked me to give conferences, information, and follow-up on this condition. Due to lack of time, I had not been able to publish it, but this is for you parents out there: "Living with Cornelia de Lange as a family"